Today is Saturday and Eric's pain is pretty extreme, he says it's an 8 alot like yesterday. Sore throat and mouth sores extremely painful. The doctors say this is the worst part and the stomach cramping and pain, but today is day 10 and they are hoping he grafts within 14-21 days. Then his throat and mouth sores would start to slowly improve once he has a immune started to fight for him.
They started a few days ago the Nuepogen shots in his stomach,that is to help boost the process and get his counts to go up and help to graft. He got up and walked for me about 20 minutes ago which was good, he still won't eat or drink anything. Not even water, they tried to get him to do water in a small dixie cup and he couldn't even take a sip he said it hurts to much even to swallow.
His mouth looks so swollen, he couldn't even open it up for the doctor, it was so sore the doctor said that was fine and that he understands. I know last time Eric got these mouth sores but nothing like this, these are horrible. One nurse said that she thinks this is one of the worst parts of the bone marrow transplant. We sent a letter to our donor, even though we can not give personal name, address, etc information we can share our feelings. It was neat to write him, I just wish I knew his name instead of just "Donor" but in due time.
I asked the social worker why they have the 1 year restriction to meet the donor if in the states and 2 years for out of the country ( that is another way we think Eric's donor is out of the country cause they told us when we got here that its 2 years before we can meet him). They said that the emotional process on the donor is very hard, they have found that the donors feel a great responsibility on their shoulders emotionally. They do not want the donor and family to meet until a then in case the patient doesn't make it, to limit the hard emotional feelings as much as possible that go along with that.
I never thought of all that, it makes sense but I really never sat and thought it out that way. I completely understand, the donor is an amazing person and no matter what the outcome I hope he knows that he did an amazing thing. I can really never put into words how grateful we are, it would never be enough. No fevers still which is a good thing, nausea still there but throwing up held back as long as he gets his ABH IV nausea medicine. Sleep, sleep, sleep that is mostly what Eric does but as I have said before that is good as long as he is resting and not in to much pain.
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