Sorry for the delay- Eric was released lat afternoon around 3pm and we have no Internet at our apartment. So when I come to the hospital each morning I will update the blog then. Eric was released yesterday and as you can imagine was so EXCITED!! Even though he was released we will be coming here early in the morning every day for 8 hours for all his treatments, doctor appt.s and blood transfusions. So pretty much we will be just going home to sleep at night to the apartment but that is good enough for us.
Eric said it felt so good to be part of the world, feel the sunshine, breeze outside, seeing people, cars, life! We also have a home health nurse who comes each night. She came to teach me how to do Eric's IV fluids and IV antibiotics that run through him through the night. Then at 6am and 10pm I have to hook up his IV antibiotics treatments so even though we are out still pretty busy. Eric had such a good night sleeping, he was up a little bit but said it was so much better than the hospital.
It feels so good to have Eric out of the hospital but it is a little different not going home and seeing the kids just coming home to the apartment, much like when we were first married. We are blessed to have Eric released and continue to ask for constant prayers for him to continue to progress upwards and his strength to get better. Still not eating anything only will drink water but since we are running the IV fluids in him they say it is ok. They weighed Eric this morning and he has lost now a total of 36 pounds. I was not as worried at first because all the prednisone steroids he has been on the last 2 years he gained weight on 30 pounds from his normal weight. Now though he is getting a little to unhealthy skinny, looking sickness skinny and I am worried about that. They have talked to us about possibly putting him on IV feeding called TPN if he loses much more weight.
I continue to pray to the Lord for his strength, guidance and protection. We have a long road still ahead and I know maybe we have traveled a few miles into that but we certainly are not out of the woods yet.. We know with continued faith in the Lord all things are possible.
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Wow you have passed through a long time goal....congrats! Be sure to check out a 2nd floor place by the A elevators where Eric can lie down to wait for those appointments that are never ontime. They call down to get you if they know he is waiting there. I don't remember the name of the rooms there but it's a family room where you can read newspapers and buy treats in the 1st 2 rooms. The 3rd is for resting in one of those comfy chairs that open into a bed.
ReplyDeleteWe're praying for you both,