Today is bitter sweet, we are so grateful to be together but also sad the kids visit is coming to an end. They fly home tomorrow morning and the kids really have been dreading it all day. The kids enjoyed their visit and Eric loved it. I am posting a few pictures of them with Eric, as you can see they are happy to be with him!! It is obvious in the pictures though that Eric is not feeling well. His fevers just keep coming and going and the infectious disease doctors came in and told us they are extremely concerned from the results on the x-rays. Eric's pneumonia and fungus infection has progressed quite a bit so they now have increased and put Eric on anti fungal medications to cover a wide variety of infections until they have his culture back which will tell them exactly what infection they are dealing with.
Eric has started to have a harder time breathing back on the oxygen tonight and is dizzy. He also has been feeling very anxious, sick of this room and the same walls. He is having trouble sleeping despite them giving him sleeping aide so now they will try another medication to see if he can sleep tonight.
Despite the fevers and infections today is day from transplant and Eric's white cells are 6.5 which is good, the donor's marrow is grafting. His GVHD on his hands/ palms has stayed the same and the pain has decreased with him using the cream medication they gave him. Today has been an emotional roller coaster and really hard for Eric, he said that he just wants to get out of the hospital and he will do much better if they would just send him home to recover. Eric is so tried of being here, not feeling well he actually told me today he is not sure he can do it one more day. He can, I told him we are doing it together and he will get through this. I know it is hard on him and he just wants to get out of the hospital but he can't so Matt Clark and Ethan came to the hospital and gave Eric a blessing. It was so touching to hear Matt be inspired what to say from the Lord, direct comfort and promptings to Eric we could feel. How grateful we are for the priesthood power and blessings we can receive. The Lord continues to bless us and guide us through our journey, long and some days seem like they will never end but it's always darkest before the dawn. We are holding on, holding for the light to come.
P.S. I am posting some fun pictures of the kids with the Clark family and Baybrook Youth/Ward friends boating, party and karaoke night that they really enjoyed while they were here.
It's hard to hear you post about what Eric says about not being able to do it one more day, because we know how Eric is and how he is a fighter. I can only imagine what being in the same room every day must be doing to his mood. Be tough Eric, you are in my prayers and we know you are a fighter. Hang in there.
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