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Today is day 100 from Eric's bone marrow transplant!! WOW- it has been a long road so far and we are about half way up the hill but grateful to be home before Christmas! Eric has had kinda of hard week this week, his home nurse was only suppose to come in 3 days a week and then we go into his Oncologist doctors once a week. However Eric's white cells having been dropping quite a bit as well as his Creatinine level very high so they had to come all through the weekend starting last Friday to give him IV fluids and treatments here at home as well as Nuepogen shots in his stomach.
His white cells went down to 2.2 which from shots all through the weekend each day by Monday he went up to 5.5 but then Tuesday back down to 2.6 so daily the nurses have came to give shots and IV fluids due to his Creatinine is 1.7. They do not like your creatinine to be more than 1.3 this affects your kidneys and cause alot of concern. I have posted a picture of Eric doing one of his daily IV treatments here at home with the new best friend again " THE IV POLE". He hates being confined to this pole, it takes about 5 to 6 hours to do his IV treatments here at home.
Eric's energy has not been very well this week but I think he has tried to be more awake and not allowing himself to rest and take naps enough so that could be some of the difference as well as his blood counts being low and these Nuepogen shots in his stomach. To give you some perspective just one on these shots he gets a day in his stomach costs $ 1,200.00!! Can you believe that? It amazes me the costs and sometimes seems not right.
We are trying to get ready for Christmas but I have been working so much this week and between that as well as caring for Eric, trying to get some of the Christmas decorations up- we are not even there yet. I get up at 5am get the kids out the door, feed Eric breakfast and his pills, update my work logs then out the door for the day. Usually getting home around 5:30pm-7pm at night and somehow do not get to bed until around 12 midnight due to Eric's IV treatments that start at 6pm each night. Alot going on, it's a busy place at our home right now but at least we are home, right?
I am so proud of Eric he has had a hard long week an half, I know he gets tired easily but he is doing good. I am so grateful to the Lord for him, for my many blessings, for Eric and his donor, my children, my warm home, food on the table, just a chance to be all under one roof and be a family again!
I'm sure you kids are just so greatful to have you and Eric home for the Holidays. Tell Eric he is in our prayers and we hope he starts to feel a little better for the Holidays. Thank you for continue your blog while you are home. It is nice to read about Eric and how all of you are doing. Merry Christmas and my God bless your family this Christmas season.
ReplyDeleteHello, my name is Kelly and I actually heard about your struggle through the Schetselaars who served with my brother in Russia. I just wanted to tell you that we will be thinking of you and praying for you this Christmas season.
ReplyDeleteMy husband was diagnosed with Leukemia almost a year ago and it was nice to read the words of someone that knows exactly what we are going through. We are immediately bonded. :)
I also have two children (much younger than yours), and there have been so many similarities in our journeys. My husband will actually be missing Christmas at home, because he is stuck in the hospital with GvH, but the doctors are happy. They were so worrried about him relapsing, because his cancer had been so unresponsive. So this case of GvH is actually our Christmas miracle. Even though he won't be home we our so grateful.
I just wanted to let you know that there is someone close by in Davis County that knows what you are going through. I also did it for selfish reasons, because I would love to be in contact with someone that knows my struggle. We will be thinking of you! Glad to hear that things are going well!