Well today started alot like the last few days we left at 6:15am this morning to come to MD Anderson for Eric's bone marrow biopsies, tests and x-rays to prepare for the transplant. We found out today that they actually went ahead and are using the other donor, the 39 year old male for Eric's donor. When they came down to some final tests they saw that the 27 year was 1 off from a 10 out of 10 match for Eric and the 39 year old was a perfect 10 out of 10. So we are grateful he had the other donor as a back up match....
It is 6:41pm Houston, TX time and we are still here at MD Anderson after all of Eric's long day of tests, bone marrow prep classes and meetings with Social Workers Eric needs to get transfused with platletts so we are still here! Long day and to make things worse we received some devasting news today....
One of the appointments we had today was to meet with the financial office right before we start the bone marrow transplant on Sunday. Of course you would hope saving a life never comes down to money but the sad reality is- IT DOES! We knew that the bone marrow transplant cost for Eric is $500,000.00 and that our insurance company approved his tranplant however our portion was going to be $ 6,100.00....or so we thought!
We were told this afternoon that all the transplant drugs that Eric will be on potentially for the next 2-3 years that are crucial to his survival will cost us over $3,433.00 a month OUR PORTION AFTER INSURANCE for just a 30 DAY SUPPLY!!! Can you beleive that? We were devastated! How can that be? How is this right? It turns out although they approved the bone marrow transplant the prescription drugs under our health plan are not included in that and we have no MAXIUM OUT OF POCKET ON PRESCRIPTIONS!!! Are you kidding me? I just started crying right there in the financial office, I asked them what do people do in these situations? They aplogized and all they said was" We advise people to do fundraisers, what fundraisers first of all who has time for fundraisers when we are fighting for Eric's life here? It seems so devastating, so unfair.
We are already having to pay $ 3,000.00 a month to stay down here in Texas as well as pay all our bills, mortgage, bills, etc back home and now this? I am pleading with the Lord to somehow help us on this, please don't let my husband get this far and die all because of money? I never thought this could happen in our todays world, but I guess I am getting a hard dose of cruel reality! We are devastated......Eric says this is to much, we should just go home instead of all this! He says it's not worth it- I told him "Your life is worth it- you can not put a price on life".
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Hang in there Tammie! The will is there, the way we will find.
ReplyDelete~ Kristie