Well we made it back from Texas / Eric's doctor appt's at MD Anderson Cancer Center. We had a short trip 3 days there and back to get back in time for the kids last day of school. It went well as most of you know we will not have all the final tests results back for 2 weeks so we will see then but his doctors were shocked how skinny again Eric is and more weight he had lost. Since we were there 3 months ago in March Eric has lost another 10 pounds! The doctors came in and the that was their first comment and concern, they asked if he is trying to eat extra healthly he replied " A little I guess but I am now eating 3 meals a day- better than I have been eating in months." They told us they don't want him to lose anymore weight so they suggested if we have to eat high fatty foods....I really don't know why he keeps losing weight since he has been dong alot better the last 3 months on eating.
His blood counts are holding pretty good his white cells are 4.00, Hemoglobin 13.4 and Red Cells are ok at 3.64 and then DRUM ROLL>>>>>>>>>>>>>His platelets for the first time in 7 years are over 100 he is at 105!!! YESSSSS!!!!! Way below normal and still critical but we are happy to see them go above 100. His levels are looking for his kidney function and his creatine and tacrolimus level is holding ok at 4.0. All in all we are happy but we are nervous... As we thought his doctors would they warned us that they are going to just start lowering slowly 2 of the 32 anti rejection/ immune suppressed medications he is taking to prevent GVHD ( Graft Vs Host Disease)- they reminded us this is the second most scary time after his transplant that they had prepared us for. They said that he has a 50% chance of rejecting his transplant and getting GVHD so we need to watch him extremely close. They warned us again about all the signs and the restrictions we need to be so careful of. I get so nervous for this and I am so scared we know a few people that did reject and get GVHD one passed away quickly and the other is declining but still holding on and they try to fight it. We are hopeful and we pray for the Lord to continue to bless Eric and help his body to fight!
We have had an emotional few weeks and hard reminders of the reality of cancer. We have had several loved ones pass away from their cancer and it has been hard for us to be reminded of the day to day risks and what we are up against. We know all things are in the Lords hands and we pray for continued faith. Eric good friend we meet during his transplant named Patrick whom has Eric's same rare cancer MDS/ Myleodisplastia recently has rejected his transplant and was told that his MDS has now rapidly turned into AML/ Lukemia he has had to immediately start to undergo more chemo and is very sick. We pray for him and his family and know that the Lord will watch over him. We realize each day what a battle this cancer is and know that the road is long and hard. We are so grateful for Eric's donor and think of how lucky we are and blessed that he donated to Eric and saved his life! We will always and forever be grateful to him- still can not wait to meet him! We ask that if any of you could please find it in your hearts to pray for Patrick right now he needs our prayers and we want him to feel our love and support around him as well as the continued prayers for all the sick that they may be comforted in their time of need.
I am so grateful to the Lord for all the blessings he has bestowed on us and know with him all things are possible! We will keep everyone posted as soon as we get Eric's final test results in the next week or so.
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